in:dispensable- business truths, tools + tips you can't do without

Pam Cusick: Helping Patients Share Their Stories

September 17, 2019 Season 1 Episode 21
in:dispensable- business truths, tools + tips you can't do without
Pam Cusick: Helping Patients Share Their Stories
Chapters
in:dispensable- business truths, tools + tips you can't do without
Pam Cusick: Helping Patients Share Their Stories
Sep 17, 2019 Season 1 Episode 21
Pam Cusick
Research expert, Pam Cusick, is connecting patients with market research companies so they can share their stories.
Show Notes

Through her work at Rare Patient Voice LLC, Pam Cusick is connecting patients with market research companies and, ultimately, helping them to share their stories and experiences. 

Show Notes:
0:00 Introduction
2:11 Pam shares her background
3:50 How Pam's work helps patients share their stories
6:29 How Rare Patient Voice is a trusted resource for people with rare diseases
8:06 Sharing our stories helps others who are struggling
12:34 Pam discusses the outreach that's involved in finding and connecting with patients
15:29 How these communities form and how knowledge about tools and resources is shared
18:09 How technology plays a role in the process
20:15 How to build trust and begin tough conversations with patients
22:49 Pam shares her passions in doing this work
25:27 How the healthcare industry "disruptors" find their data and information
28:15 The risks related to sharing your information through apps and technology
32:50 Pam shares her favorite tools
36:54 How experimenting and launching before it's perfect has helped Pam and her team
39:01 The importance of authenticity
40:15 The truths that have guided Pam
42:05 Pam shares how people can contact her
43:46 Conclusion

Links:
Pam's LinkedIn profile
Rare Patient Voice's website
"The Five Second Rule"
https://www.q1tech.com/


 


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